Ahead of VLCAD Deficiency Awareness Day, Pittsburgh Family Launches “Be the Spark” Campaign to Advance Life-Changing Technology for Rare Disease Community
FOR IMMEDIATE RELEASE Media Contact Info: Ashley Bauer Founder Maddie’s Spark Foundation ashley@maddiesspark.org 423-329-6350 Image 1: A little girl with big dreams. Maddie celebrates her Pre-K graduation, a reminder that children living with rare diseases deserve every opportunity to learn, grow, and shine.; Image 2: During Maddie’s hospitalization in […]